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Lewy Body Dementia Program

The Lewy Body Dementia (LBD) program at Rush is a trusted resource for patients with Lewy body dementia and their families. In fact, Rush has been designated by the Lewy Body Dementia Association as a Research Center of Excellence since 2017. This prestigious designation recognizes that Rush offers an elite, multidisciplinary, holistic approach to LBD.

Our expert team provides a full range of specialty care services and support, including the following:

We are also leaders in research on movement disorders with prominent neuropsychiatric features like Lewy body dementia, Parkinson's disease, atypical parkinsonism (such as progressive supranuclear palsy, multiple system atrophy and corticobasal syndrome) and Huntington’s disease.

Contact us today

If you are having symptoms of Lewy body dementia or have previously been diagnosed with LBD by a physician, please call (312) 563-2030 and select option 1 to schedule a consultation with our team.

Patient-centered, team care

Our team of neurologists, psychiatrists, therapists, counselors and other professionals have expertise working with families affected by Lewy body dementia. We  are committed to helping families plan the best possible care program at every stage of the disease.

Our team also works with a variety of other providers at Rush as needed to address specific symptoms or provide additional support:

  • Physical therapists can help with movement problems through cardiovascular, strengthening and flexibility exercises, as well as gait training and general physical fitness programs.
  • Speech therapists may help with low voice volume, voice projection and swallowing difficulties.
  • Occupational therapists help identify ways to more easily carry out everyday activities, such as eating and bathing, to promote independence.
  • Mental health counselors can help people with LBD and their families learn how to manage difficult emotions and behaviors and plan for the future.
  • Nutritionists/dietitians can help provide people with the tools to meet their personal health goals, including managing nutrition issues related to chronic diseases and swallowing difficulties; increasing energy; and maintaining a healthy weight
  • Chaplains can help patients and families sort through emotions and find the spiritual strength and resources needed to get through difficult times.
  • Palliative medicine specialists can help patients and families dealing with chronic and/or terminal conditions reduce the pain, stress and symptoms associated with serious illnesses.

Leading-edge research

The Rush Lewy Body Dementia program is involved in a wide range of research, from basic science studies to clinical trials. Because we are part of a consortium of clinical investigators, we can offer patients and families access to the full spectrum of clinical trials for Lewy body dementia.

The goals for all of our investigations are to ease symptoms, slow the disease's progression and, ultimately, find a cure. These are some examples of current projects:

  • Longitudinal, observational studies of Lewy body dementia that follow patients over many years to answer fundamental questions about who gets Lewy body dementia and how we can detect it earlier. Learn more about Biomarkers in LBD, a clinical study by the LBD Consortium that seeks to provide a better understanding of the biology of LBD in hopes of improving early diagnosis.
  • Medication trials to treat different symptoms or to potentially slow or alter the rate of disease progression
  • Studies focused on improving our understanding of the mechanisms and features of symptoms of Lewy body dementia, including those related to physical (motor) function, thinking and behavior
  • Biomarker and genetic studies
  • Brain donation program

Supporting patients and families

Providing ongoing education and emotional support is vital to our mission of delivering holistic, comprehensive Lewy body dementia care for patients and families. That’s why we offer the following:

  • Support groups held at Rush. Open to people who are currently living with LBD, as well as family or friends of someone with the disease. For more information please call (312) 563-2900 and press 5.
  • Educational events for patients, families, caregivers and health care professionals (topics, dates and times vary).