Fragile X Syndrome Clinic

Children and adults with fragile X syndrome have unique medical, behavioral and educational needs. You and your loved ones will get personalized care and evaluation at the Fragile X Syndrome Clinic at Rush — the only clinic for this genetic disorder in Chicago.

The clinic provides comprehensive care, including the following:

  • Medical assessments of associated neurological issues (e.g., seizures)
  • Treatment to manage symptoms (e.g., medications, referrals for complementary therapies)
  • Family counseling and education

 To make an appointment:

  • Patients must already have a fragile X syndrome diagnosis.
  • The clinic schedules appointments two to three months in advance.

Remarkable Care for Kids

  • Comprehensive care for fragile X syndrome: The Fragile X Clinic at Rush offers comprehensive care, family counseling and diagnosis of fragile X syndrome. This is the only fragile X clinic in Chicago.
  • Access to clinical trials: Pediatric neurologists at Rush University Children's Hospital are clinician-researchers who are leading research studies that focus on novel approaches to treating children with fragile X.
  • Family-centered care: The heart of Rush University Children’s Hospital is family-centered care. Your child's care team believes your family should play an integral role in determining the best care plan to address your child’s unique needs and lifestyle.