Reevaluating the MDS-UMSARS for Multiple System Atrophy (MSA)

In this study, we will apply the cognitive pretesting method to evaluate and refine the MDS-UMSARS (a rating scale for patients with multiple system atrophy (MSA)) by assessing participants' understanding, interpretation, and responses. This approach helps identify potential uncertainty, misunderstandings, or issues in the UMSARS and will help improve it.

Participants will be recruited according to the eligibility criteria:

• Patients: Adults meeting the criteria for MSA (1).
• Care Partners: Any adult active in the patient’s routine who, during the last six months, has given personal care or been involved in identifying, preventing, or treating MSA symptoms for one month or more, such as family members or hired caregivers.
• Movement disorders specialists (such as clinicians and nurses) of either sex or age, with at least three years of clinical and/or research experience with people with MSA.
• We will exclude medically unstable participants in an immediate postoperative period.

This is a partial list of eligibility requirements. To inquire about your eligibility, please call the contact number provided. If you wish to inquire via email, please include the title of the study in your message.