Mastocytosis Patient Registry

The purpose of this study is to collect information about mastocytosis, your disease course, and your response and adverse effect to treatment. Information will be gathered from the time of your diagnosis, as well as at every subsequent visit. This information will be collected and stored for future research uses. All patients with mast cell disorders who receive care at Rush University Medical Center may be invited to participate in this data collection.

In order to participate you must meet the following criteria:

• Have a diagnosis of indolent SM (ISM) and/or aggressive SM (ASM) based on WHO criteria seen in the mastocytosis clinic at Rush.

You will be excluded from the study if any of the following criteria apply to you:

• Are under the age of the study parameters.

This is a partial list of eligibility requirements. To inquire about your eligibility, please call the contact number provided. If you wish to inquire via email, please include the title of the study in your message.