Do You Have Lupus?
Do you want to effectively and efficiently let your lupus doctor know how lupus or its treatment affects your daily life?
Our lupus survey tools were developed for just this purpose.
Lupus Survey Tools
LupusPRO V1.7 is a 43-question survey designed specifically for patients with lupus. It measures a number of ways that lupus may affect a patient's mental, emotional and physical health.LupusPRO
Lupus Impact Tracker (LIT), derived from LupusPRO, has only 10 questions. It is quick and easy to use for lupus patients and their doctors.Lupus Impact Tracker
Body Image in Lupus Screen (BILS) provides a quick way to screen for body image concerns among people with lupus. BILS is available as a separate tool and is also included in LupusPRO as a health-related quality of life (HRQOL) domain.Body Image in Lupus Screen
More About LupusPRO and Other Lupus Survey Tools
These survey tools were developed at Rush University by Meenakshi Jolly, MD, a lupus expert on the medical staff of Rush University Medical Center, in collaboration with A. Simon Pickard, PhD, a professor in the Department of Pharmacy Systems, Outcomes and Policies at the University of Illinois at Chicago.
Dr. Jolly and Dr. Pickard developed LupusPRO to measure the effects of lupus or its treatment on patients’ daily lives. The items for this tool are based on feedback from real-life lupus patients, women and men, of varied racial and ethnic backgrounds.
Dr. Jolly is a professor of medicine in the Department of Medicine, Division of Rheumatology, and the Department of Psychiatry and Behavioral Sciences at Rush University. She is director of the Rush Lupus Clinic, and is actively engaged in research on patient-reported health outcomes and psychosocial health in lupus. Dr. Jolly has developed and validated lupus survey tools using FDA guidelines. She has also developed the Simple Disease Assessment for People with Lupus Erythematosus (SIMPLE) Index to quantify disease activity in lupus, which requires negligible health care personnel time and only two lab tests.
For More Information and Permission to Use the Tools
Meenakshi Jolly, MD
Professor of Medicine
Department of Medicine, Division of Rheumatology
Rush University Medical Center
1611 W. Harrison St., Suite 510
Chicago, IL 60612
Phone: (312) 563-2800
Fax: (312) 563-2075
Email: Meenakshi Jolly, MD
Conditions of Use
- With author’s written permission only.
- Free for academic/nonprofit research, with the signature of an agreement.
- With fees for commercial/pharmaceutical companies, with the signature of an agreement.
- This website provides information you may need to use this tool to provide clinical care at your center or for research purposes.
Meenakshi Jolly, MD, and A. Simon Pickard, PhD
Rush University and University of Illinois at Chicago
Lupus Impact Tracker Resources
Body Image in Lupus Screen Resources
- Jolly M, Pickard AS, Sequeira W, Wallace DJ, Solem CT, Mikolaitis RA, Fogg L, Weisman MH,Block JA, Cash TF: A brief assessment tool for body image in systemic lupus Erythematosus. Body Image, 2011, 9(2): 279-284.
- Jolly M,Pickard AS, Mikolaitis RA, Cornejo J, Sequeira W, Cash TF, Block JA: Body Image in Patients with Systemic Lupus Erythematosus. International Journal of Behavioral Medicine, 2012,19(2): 157-164.
- Jolly M, Peters KF, Mikolaitis R, Evans-Raoul K, Block JA. Body image intervention to improve health outcomes in lupus: a pilot study. J Clin Rheumatol. 2014 Dec;20(8):403-10. doi: 10.1097/RHU.0000000000000141.