On this page you will find a list of Web links that may be relevant to you as a connective tissue disease patient or family member.
MedlinePlus is a great resource website for both patients and physicians. It provides educational articles, images, patient handouts and multiple other links to helpful resources.
The Osteogenesis Imperfecta Foundation: This is a resource for individuals and families with OI. This site promotes awareness about OI among the general community as well as medical professionals by providing education resources, handouts and information regarding conferences. It also allows individuals to join support networks and increase interaction among individuals who have OI.
The National Marfan Foundation: This is a resource for individuals and families with Marfan. The goal of this organization is to improve the quality of life for individuals and families affected by Marfan syndrome. It provides information regarding ongoing research, education and support services to individuals with the syndrome as well as health care professionals.
The Ehlers-Danlos National Foundation This is a resource for individuals and families with EDS. The site promotes awareness of EDS and provides medically accurate information. It also provides support and networking opportunities and fosters research funding.
The Arthritis Foundation offers information and tools to help people live a better life with arthritis and related autoimmune diseases, including advice from medical experts.
The American College of Rheumatology's mission is advancing rheumatology. The organization is for physicians, health professionals, scientists and patients, offering education, research and advocacy programs along with practice support.