The Sandra Rosenberg Registry for Hereditary and Familial Colon Cancer is the only active registry of its kind in Illinois and one of just 32 in the United States. The mission of the registry is to provide the best care to patients and families with a history of colorectal cancer, and to conduct research to further the understanding and management of the disease. There are two main types of inherited colon cancer: familial adenomatous polyposis (FAP)and hereditary nonpolyposis colon cancer (HNPCC).

Below are some of the Registry's activities to meet our mission:

Patient Care

• Identify people at high risk for colorectal cancer based on family history
• Advise individuals at high risk and assist them in selecting appropriate screening tests
• Provide specialized counseling and genetic testing where appropriate
• Provide state-of-the-art care for cancer patients
• Act as a patient advocate for a range of issues, including genetic discrimination

Education

• Educate patients and families on the nature and implications of inherited colorectal cancer
• Educate physicians and other healthcare professionals on the basics of colorectal cancer genetics and their clinical implications
• Encourage and foster the development of inherited colorectal cancer registries throughout this country and the world

Research

• Conduct clinically relevant research on the types of inherited colorectal cancer, including familial adenomatous polyposis and hereditary nonpolyposis colon cancer.

Marc I. Brand, MD, Surgical Director, Colon & Rectal Surgery
Joshua Melson, MD, MPH,  Medical Director, Gastroenterology
Gerry Bohac, MD, Medical Oncology
Janine Gauthier, PhD, Psychosocial Oncology
Alfred Guirguis, DO, Gynecologic Oncology
Jacob Rotmensch, MD, Gynecologic Oncology
Theodore J. Saclarides, MD, Colon and Rectal Surgery
Mary Patricia Kraus, Registry Administrator

For More Information

For more information, see our FAQs about colon cancer registries or visit our Web site at www.foryourcolon.org