The Sandra Rosenberg Registry for Hereditary and Familial Colon Cancer is the only active registry of its kind in Illinois and one of just 32 in the United States. The mission of the registry is to provide the best care to patients and families with a history of colorectal cancer, and to conduct research to further the understanding and management of the disease. There are two main types of inherited colon cancer: familial adenomatous polyposis (FAP) and hereditary nonpolyposis colon cancer (HNPCC).
Below are some of the registry's activities to meet our mission:
Identify people at high risk for colorectal cancer based on family history
Advise individuals at high risk and assist them in selecting appropriate screening tests
Provide specialized counseling and genetic testing where appropriate
Provide state-of-the-art care for cancer patients
Act as a patient advocate for a range of issues, including genetic discrimination
Educate patients and families on the nature and implications of inherited colorectal cancer
Educate physicians and other health care professionals on the basics of colorectal cancer genetics and their clinical implications
Encourage and foster the development of inherited colorectal cancer registries throughout this country and the world
Conduct clinically relevant research on the types of inherited colorectal cancer
, including familial adenomatous polyposis and hereditary nonpolyposis colon cancer.
Marc I. Brand, MD, surgical director, colon and rectal surgery
Joshua Melson, MD, MPH, medical director, gastroenterology
Janine Gauthier, PhD, psychosocial oncology
Alfred Guirguis, DO, gynecologic oncology
Jacob Rotmensch, MD, gynecologic oncology
For more information, see our FAQs about colon cancer registries.