Motor neuron diseases generally present with gradually progressive weakness that may start in one limb. Speech may also be affected. Patients suspected of having motor neuron disease are thoroughly evaluated clinically and with electrodiagnostic testing. Necessary blood tests and CT or MRI scans are also obtained and personally reviewed by a neuromuscular physician. Treatment involves a multidisciplinary approach including medication options as well as physical, occupational, respiratory and speech therapies. Treatment is tailored to individual patient need to optimize quality of life. On a daily basis, we are available by phone or page to help our patients and their loved ones cope .
We believe that a cure for amyotrophic lateral sclerosis (ALS) will one day be found. In fact, Rush is involved in studies that may lead to revolutionary new treatments. Until a cure is found, we are committed to finding new ways to slow the progression of ALS and improve quality of life. To that end, we are involved in clinical trials of new drugs and other therapies.
Rush patients have access to the most advanced diagnostics and therapies for ALS, including:
- Sophisticated tests for diagnosing ALS, including electromyography (EMG), magnetic resonance imaging (MRI), and nerve conduction studies.
- The latest medications, including the recently approved riluzole (Rilutek) that helps prolong the lives of ALS patients.
- A full array of services designed to improve quality of life, including occupational therapy, speech and swallowing therapy, and respiratory therapy.
- A monthly support group for patients and their families. Run by our social worker, these group meetings provide information on disease management as well as emotional support.
A disease like ALS requires the expertise of an entire team of experts. Our team includes:
- Two respected neuromuscular physicians
- Two nurse clinicians who are experienced in the care of patients with neuromuscular disorders
- A speech and swallowing specialist
- A nutritionist
- An occupational therapist
- A social worker
- An orthotics specialist
- A seating specialist
- A respiratory therapist